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Success Stories-Families





Some stays at Sarah House are brief, however, one is often still left with the lingering sense that our purpose stood served. I think of Tom, his boy, and the smell of blooming jacarandas. Tom’s wishes were clear - no hospitals, no heroic medical interventions. Instead, Tom came to Sarah House to finish, as he simply put it, “the work of life.” But as Tom reminded us, dying can be about much more than just death. With only days left of life, he had let go of his little cabin by the coast, let go of his handcrafted cabinets, his music collection, and come to Sarah House with nothing but his son Jesse. Estranged for over a decade, the two had only recently reunited in hopes of recovering their family.

By the time Tom arrived he no longer desired food or nurses or conversations, but came in need of a quiet refuge, a darken room, and some gentle care. Within minutes of settling into his new room Tom was asleep, but Jesse was left looking lost and all together overwhelmed. Some staff sat down and slowly answered his questions, patiently addressing each concern, every hypothetical. Jesse, also worried he would have to leave at night, was overjoyed when a mattress was brought in for him to sleep aside his father. We showed Jesse some basic care giving he could do to keep his dad comfortable, like moistening his mouth with a little sponge and slowly stretching his arms and legs. For three days Jesse stood vigil over his dying father,  retelling childhood stories and old family memories. Jesse would also occasionally take out Tom’s guitar and play songs he had taught him as a boy. Tom spoke little but what he said are the sort of gifts that can only be shared in the presence of death.

With Tom’s needs well attended to by Jesse our role at the house shifted to supporting Jesse in the sacred work he was invested in. We brought him club sandwiches and lemonade, we would check in with him when he came out for more coffee or offer him an encouraging hug. Early on the last morning while Tom was still asleep I found Jesse out collecting jacaranda blooms. He told me how this was his first time with anyone dying before and how grateful he was for the space to be with his dad and this opportunity to restore their relationship. It is unfortunate that our conventional medical approach to dying so often excludes family from this meaningful experience. By inviting family and friends to participate in the dying process, it seems Sarah House is helping to change the character of death from a medical secret to a human experience.

Later that afternoon Jesse emerged from Tom’s room with a shaky smile to tell us calmly that his father had finished his work and had died. We came around him in an embrace and told him how incredible they both had been. We poured tea and began listening to Jesse tell the story. As he tells it he was afraid to return home when he first heard his dad was dying, how he had pictured intensive care units, sterile waiting rooms, and faceless machines. “But this was not a horror show,” Jesse says over a sip of his tea, “this is a scene of indescribable peace. It was all so effortless, like an ice cube melting into a glass of water. I never imagined death could be beautiful.” The stories of Sarah House are the simple stories of giving and receiving of human love.

 


 


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